Ratings for Dr. Susan M. Levine
Dr. Levine is one of the few doctors who truly believes in, understands, and commits to fighting illnesses like ME/CFS and Fibromyalgia. There is a select group of very well known specialists in these areas in New York City. I have seen all of them at least once and decided to stick with Dr. Levine. Whereas many other CFS/FM specialists refuse to take any type of insurance, Dr. Levine does and she doesn't bill too aggressively or demand exorbitant fees. The office is extremely busy and they could do better administratively, but they are caring and I can live with the few hiccups with scheduling, etc. because of the level of care that I get there. Dr. Levine always answers all of my questions thoroughly and she actually remembers things I tell her (with many other top-rated and highly sought out physicians, I basically have to re-introduce myself every time I see them). She has been incredibly supportive when I wanted to try new treatments and even when I go against her advice, she does what she can to make me more comfortable and less ill. I get that she isn't for everyone, but I have had a great experience with her for years and will continue to see her.
Dr. Levine is a leading ME/CFS researcher. As someone who is very ill with this debilitating disease, I am deeply grateful for the contribution she is making. As a clinician, she's not for everyone. While compassionate, she and her staff are profoundly disorganized. In my case, this led to confusing inconsistencies in care and mixed messaging about what medications I should be using and what treatments I should try. As my health continued to deteriorate under her care, I decided to move on. That said, if you think you have CFS, I would still recommend a consultation with Dr. Levine. You'll get a diagnosis you can trust. And you may find that she can help you. Many people have.
I see she misdiagnosed someone else's Lyme disease. In my case she ran the tests backward, doing the least sensitive last. My test was positive but for some reason she told me it wasn't. Four doctors and a course of antibiotics later I am at 75% of my previous capacity. I'm going back to grad school and I'm definitely going to be able to work again. Stick with Dr. Levine if you want to stay disabled. Sure she will write you a disability letter whenever you want, but wouldn't you rather not be disabled? Lyme disease is a leading cause of fibromyalgia and CFS. New York has a ton of infected ticks. Dr. Levine does not know how to treat it and she does not know how to test for it. There are plenty of decent integrative and functional medicine doctors. Find one of them and skip this woman. She seems nice and and empathic but she is invested in keeping you sick. I found her negative attitude unappealing. Keep searching until you find what makes you better.
I started seeing Dr. Levine 20 years ago. She has helped me greatly over the years. I moved out of town approx. 10 years ago and came back to her as soon as I returned to the area. She will work WITH you, not just ON you, most doctors do not do that. If you ask her a question, she will answer that question -- not "respond" with something unrelated (which happens far too often in other doctor's offices). Having developed CFS/CFIDS in the mid-80s, I went many years undiagnosed, then diagnosed but offered no treatment. Then I found Dr. Levine and things got better -- slowly, arduously, but better. She knows this illness and if a treatment isn't working for you, she will change it up. I've seen too many doctors who's attitude is a cookie cutter treatment protocol of "this is how we treat this" whether you are responding, or not. That's not Dr. Levine, she will work with you until something is working for YOU. You may have to try a few different meds and doses to find the best combination for you (we all respond differently to things), but if you work with her you stand a very good chance of getting there.
I wish I had the same experience as everyone else on here. I desperately wanted that to be the case - as you all know when you have CFS you need some hand holding. And I'm barely needy. I do TONS of research on my own, see a Naturopathic Doctor, eat all the proper diets, etc but all Dr. Levine was really able to supply me was a diagnosis and great blood work. After that it felt like I was 100% on my own. Hey, the diagnosis and blood work were super helpful but now what? I feel like I've been hung up to dry and that because I'm not 100% bedridden and home bound that I'm not worth paying attention to - even when I'm reaching out on a very consistent basis. I couldn't get a treatment plan out of her to save my life.
Dr. Susan M. Levine's Credentials
Accepting New Patients
Areas of Expertise
Awards & Recognitions
Publications & Research
Insurance accepted by this Doctor
Top Hospitals in New York City, NY
Top Urgent Care Centers in New York City, NY
Find a Doctor by Specialty
- Ear Nose and Throat (ENT) Doctor
- Emergency Room Doctor
- Endodontist (root canal)
- Family Doctor / G.P.
- Gynecologist (OBGYN)
- Infectious Disease Specialist
- Internist / Geriatrician
- Massage Therapist (registered or licensed)
- View all Specialties >
Top Allergists / Immunologists
#1 of 173
#2 of 173
#3 of 173
#4 of 173
#5 of 173