Great 1st impression when my boyfriend was with me, giving us hope. He said he knew how limiting Narcolepsy was. Asking abt my med coverage, which I had none bc I lost it when I had to stop my job bc of my Narcolepsy. He said he was in the business of helping people get better not so he could get rich. Next 3 apps by myself were disappointing. 2nd Appt, he spent mainly describing his frustration with aggressive apnea devices salesmen. I was being polite & tried to steer him back to my health but he just kept on until he kind of snapped out of it & 5 mins discussing my health. 3rd, he was saying I needed to have health insurance so I needed to get a job. I told him how I had to stopped working bc Narcolepsy symptoms. I informed him I applying for disability bc I so I'd be eligible for/get Medicaid. Responded that I should be able to find some job. I told him I was struggling just to take care of myself. He said maybe my dad could "employ" me @ his company so I could med insurance. I said no. He said he didn't know what he could do for me w/o insurance. I was planning on just continuing the same meds until I got Medicaid then we could try other options. He said I needed to retake my sleep study there (which was of poor quality) but with Cataplexy, I asked why? He changed subject to wrap up & end the Appt. 4th, he asked me "you're in college, right?" No. Working? No. Well, there are many training programs, you need to find some work w/ benefits, "I can't treat you if you don't have insurance" I started crying bc I was confused & stunned & hurt. I had told him 3 times that I had to stop working at the well paid job I loved bc of Narcolepsy symptoms. I told him my dad was willing to loan me money to get meds & treatment until I got Medicaid so what was the problem? He sighed and said if I didn't know the answer to that by now, then there was nothing he could do for me. Me: You want me to take another sleep study. He wrote out the order for another sleep study @ his lab & instructed they charge me Medicaid rates. As he wrote out my prescriptions, he said I could only see him once more bc I don't have medical coverage. I was dumbfounded as was his medical assistant & intern. They both said sorry, they don't know why he said that and mentioned he was very stressed lately. I was confused, hurt, & disappointed by this doctor. I waited 3 & a half months for a new patient appt w/ another doctor to treat my Narcolepsy & Cataplexy. Went 2 weeks horrible without meds but now have a great doc that has put me on a new med (free through PPA) & I am doing better. Said a new sleep study wasn't necessary with the Cataplexy.

Submitted June 6, 2016

COMPLICATED NEURLOGICAL PROBLEMS. THIS IS THE DOCTOR THAT MADE MY DIAGNOSIS AFTER YEARS OF SUFFERING.

Submitted Dec. 5, 2013