Rate Dr. Susan M. Levine
Dr. Susan M. Levine's Ratings
Again to the person who had a bad experience with Dr. Levine - I also had a positive lyme test but only from Igenex. The bands that were positive were also bands that will appear positive if you have very high EBV titers. I had very high EBV titers and since my other 6 Lyme tests were negative, we had to make the collective decision that this was not (in fact) Lyme. Chronic Lyme is a gray area, perplexing the best of doctors and patients alike. Long term antibiotics kill the gut making the immune system weaker - a big 'no no' in CFS. Dr. Levine has always looked at all the angles, made all the suggestions and worked with me on what my needs are for where I am in my illness. I am grateful I live so close to her - as I don't know how so many people survive this debilitating illness without a doctor who truly understands. Dr. Levine truly understand. She is committed to conferences, the latest trials, drugs, tests, etc. She is leaps ahead of most doctors regarding CFS. Again, beyond grateful for her.
Submitted Sept. 7, 2014 | flag
For the person who disparaged Dr Levine with the comments posted on August 11th 2014. The illness you got from a tick bite is Lyme Disease & is known to be one of the causes for CFS. It is not her fault that CFS is still considered a vague disease that is the fault of the CDC. What she told you is right. However you should have asked for more testing to determine the infectious cause of the CFS. I haven't seen Dr. Levine since 2007 but I can tell you when I had my last EBV infection that causes my CFS & caused me to have Encephalitis she literally saved my life. After having another outbreak for the last year & working with the famous immunologist that discovered AID's I find myself getting ready to call Dr. Levine tomorrow and despite having moved from NYC to LA and having to come to my families home in Seattle because I am so sick and bedridden; getting no help from this other top immunologist, I am ready to power through & fly to NYC just to see her because I've seen a million Drs. & she is the only one who really gets it. If you pull up a search on her & EBV like I did last night you'd see a post of two different people talking about her and saying that Drs. now are just discover info stuff that she knew 20 years ago. It's a shame that you've been sick for so long and I feel for you, but as patients we also have a certain responsibility to help advocate for our own health & I wouldn't say that she misdiagnosed you because you probably did have CFS, you just hadn't gotten to the root of the cause which can be a very complicated process. I hope you are feeling better & also want to make sure people know that Dr. Levine is an amazing Dr and if anyone has symptoms of CFS you should see her but also as with any doctor try to get to the root of the cause of your CFS by researching some of the infectious causes of the disease.
Submitted Aug. 17, 2014 | flag
This doctor, who should have her license revoked, misdiagnosed me and destroyed five years of my life. Fpnow, five years later I found a doctor who figured out that the vague "CFS" was not, in fact, what I had. I had an illness you get from a tick bite. She tested me for it. I was positive. She ignored it. She's careless. She isn't smart. She is so disorganized that you're lucky if she remembers your name. Don't see her. Don't let her ruin five years of your life.
Submitted Aug. 12, 2014 | flag
Submitted Aug. 11, 2014 | flag
I saw Dr. Levine on the recommendation of my social security disability attorney. I had been diagnosed with Chronic Fatigue based on a sleep study and symptoms but it hadn't shown on lab work. Dr. Levine put it all together in a coherent way. She ran more tests with lab results supporting the diagnosis and some other findings to explain my many health problems. She was out of network with my insurance so I will pay $350.00 for the office visit (typical for an expert consult in NYC). Blood work is covered by insurance. I later found out I would have to pay $500 for her to write a report putting it all together for my lawyer. Ouch. Being disabled I don't have the money but will borrow it for her report because she is the only doctor who got the diagnosis right and understands what having CFS means for someone unable to work. I liked her. She is smart, strong, direct and understanding. She IS a real expert in CFS-unlike others I have seen.
Submitted Jan. 30, 2014 | flag
This was our first visit to Dr. Levine. We drove from VA. to see her. Unfortunately is the only specialist accepting insurance upfront. What has happened to the other specialist, have they become money-oriented and not patient-oriented. Has a extremely small operation and staff. Hopefully she will just as good as my wife's first specialist, Dr. Paul Chaney.
Submitted Oct. 15, 2013 | flag
I consistently find Dr. Levine very easy to communicate with. She listens and gives feedback, yet as informed and intelligent as she is in the field of immunology,(CFS in particular)she is never dogmatic. Knowing that Dr. Levine is "on my side" as I navigate this mulitsystemic and debilitating illness really does give me a sense of security. Thank you!
Submitted Aug. 8, 2013 | flag
Dr Levine is my doctor for over 20 years. She keeps updated on CFS and Fybromyalgia, very knowledgeable.I will recommend patients to make notes prior to their visit,ask her all you want to know, she will respond to all. Not perfect,she gets cranky when she has a very busy day. Dr Levine is very special. I have brought my daughter to her, and she discovered what no other doctor in FL could found. In my opinion she is a gifted doctor and I do recommend her highly to those who can't find an answer to their ills. She will research until she will give you and answer. She has participated as a speaker on CFS/FM in several events I attended in the past at Yale university. She does get involve in the cause of finding answers for us as patients. I trust this doctor blindly as she has proven to be there for me all those years. I love Doctor Levine and I feel very grateful for all what she has done for me.
Submitted June 6, 2013 | flag
Dr. Levine is kind, caring, knowledgable, open to suggestions and up to date on the latest research involving CFS. I'm not sure she's going to be able help because CFS is so hard to treat - but she definitely tries.
Submitted June 11, 2012 | flag
When I started seeing Dr. Levine, I thought my life was over. With CFS, I slept all of the time, was depressed to the point of suicidal thoughts and was waiting to die. I am now back to work full time and am so happy to have my life back. It's not perfect, and I have some times when I am still very exhausted, but I can deal with the these times so much better than before I saw her. She listens and calls you directly. She was recommended by my GP, who doesn't make recommendations lightly. I might not be here today had I not met her!!
Submitted April 20, 2012 | flag
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